Here you will find links on EB. Please, please educate and inform yourself on this disease. Be part of the cure. Help get the word out about EB, so that another mother doesn't have to go through it like Courtney Roth has. Take a moment and donate or help raise awareness about EB so that no other child has to suffer from this disease.
These are just a few places to help. The BEST outlet for EB info is a parent who has a child with EB. Courtney at "Eb"ing a Mommy is a fountain of knowledge. Head over to her blog and read her story. I guarantee it will touch your heart.
Make EB Awareness Week last all year long.
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